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My Journey to Treating HIV Without Pills

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9 Comments

Robert

Thanks Jay I identify with your story, especially the loss of bowel control, very difficult to deal with kudos for saying it ! I am convinced the meds caused that for me, Having been on injectables for almost six months the most amazing thing is that problem is gone! I no longer have to live with a humiliating side effect. I will not put toxic medications in my digestive tract again. cheers Bob

April 16, 2024 Vancouver Canada

Alejandro_Bueno

I have been on Cabenuva for about a year. Sometimes the side effects can be harder than others. I still get soreness for a about a week and cold like symptoms for a few days. I have a stomach condition and the oral medication was making me sick. Once I get over the side effects the week after the injection, I feel perfectly fine until the next one. Like the article says, it's nice not to have a daily reminder of my status and as a bottom I need my digestive system to be fit as a fiddle.

March 16, 2024 Florida

VROSS

I have been on Cabenuva for a year and a half now. I must admit this is the best decision I could have made in regards to my HIV care. Long live the fight that so many of our soldiers have fell victim too. We are the next generation of voices that will advocate and help change the stigma as well as the ignorance that was taught to those who do not yet have yet been educated. Love others as you want to be loved.

March 7, 2024 Tucson

Johnny

I take one big pill nightly, injectables sign me up! Would it be cost effective vs my 90 day supply of pills? What's the side effects? How do I convince my PA/HMO/Medicare to switch to that. I've been undetectable several years now, I can't afford to get sick again, I have a incapacitated paraplegic husband I care for 24/7 now. With an injectable it becomes one less thing I'd have to worry about nightly! I'll present your article at next Dr. appointment. Mahalo

January 27, 2024 Hawaii

StillPoz

I’ve been on injectable cabenuva for over a year now and am still not undetectable. Each month it’s a gamble if one leg will be so sore I can’t walk on it for a day or so, or I’ll have a lump at injection site. All to still br detectable. True one injection is pretty mild, the other injection hurts.

January 27, 2024 San Francisco

Doug

We ought to just dispense with the current medical system altogether, and market every drug in vending machines. Hypocrattic oath? What's that? It's apparently meaningless where money is concerned.

January 26, 2024 Minnesota

mwarriner

As someone who takes about a dozen pills a day for various other things, taking one more for HIV has never bothered me, but you make a credible case for why long-acting injections would make life a lot easier for some people. Good luck with them.

January 23, 2024 California

Mark Howard

Almost all of people on injectables in the Toronto area are recently poz, do not take other medications and do not have wasting. As a long term survivor with a history of Hepatitis B and taking additional medications and challenged by wasting, I don’t see this drug advantageous for me?

January 23, 2024 Canada

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